Privacy Policy | ALS United of Georgia

ALS United of Georgia Website Privacy Policy

Effective Date: March 3, 2025

ALS United of Georgia values its users' privacy. This Privacy Policy ("Policy") describes how ALS United of Georgia, Inc., a 501(c)(3) organization (“we” or “ALS United of Georgia”) collects, uses, shares, and protects information when you interact with our website (www.alsgeorgia.org) (the “Site”).

When we say “we,” we mean ALS United of Georgia, who will act as a data controller for your personal information. The address for ALS United of Georgia is 227 Sandy Springs Place, Suite D, Box #304, Sandy Springs, GA, 30328, United States of America.

EU, Swiss, and UK residents should review the Jurisdiction-Specific Notices section of this Policy.

Specifically, this Policy will inform you of the following

The Information We Collect
How We Use Your Information
How We Share Your Information
How We Protect and Store Your Information
Our Retention of Your Information
Opt-Out Choices
Deletion Requests
No Use by Children
Links To Unaffiliated Third-Party Websites
How to Contact Us
Privacy Rights
International Data Transfers
Jurisdiction-Specific Notices
Updates to this Privacy Policy

1. The Information We Collect

We may collect information about you by the following means:

Directly from you, when you provide information to us or interact with us, including when you provide a donation, subscribe to our newsletter, or request to participate in our care services.
Automatically from you, when you utilize or interact with our Site.
From online advertising companies who may share information about the marketing and advertisements you have seen or clicked on, or other sources of publicly available data.
From our third party sources such as our, vendors, suppliers, contractors or partners.

We may collect the following categories of information:

Contact information and any other information you choose to include when you sign up to receive information about our organization, make a donation, or communicate with us via e-mail, mail, or other channels. This information may include name, e-mail address, company name, job title, mailing address, and phone numbers.
Financial information if you make a donation to ALS United of Georgia. We will collect payment information such as your credit card to process your transaction. We may use a third-party payment service to process payments and will retain your credit card information only for as long as necessary to process the transaction.
Health information such as date of diagnosis, healthcare provider name, clinic where you receive care and hospice status as part of ALS United of Georgia’s care coordination services and care grant programs.
Social media information, such as social media identifiers and/or interests or opinions expressed, if you engage with us directly on social media platforms.
Employment information if you apply for employment with us or volunteer your professional services. We may collect employment information including job history and credentials or title and organization with whom you work.
Online user activity described in the next section.
Legally required information that may be required by laws that apply to ALS United of Georgia.

When you interact with the Site, certain information about your use of our Site is automatically collected. This includes:

Usage details about your interaction with our Site (such as the date, time, and length of visits, and specific pages or content accessed during the visits, search terms, frequency of the visits, referring website addresses);
Device information including the IP address and other details of a device that you use to connect with our Site (such as device type, operating system, browser type, and mobile network information);
Location information where you choose to provide the Site with access to information about your device’s location; and
Site usage information. We collect information about your interaction with the Site, including the pages viewed and how you reached our Site.

Much of this information is collected through cookies, web beacons, and other similar technologies, which may be operated by our analytics and marketing partners who assist us in serving ads or providing other services to you.

Your browser may allow you to disable cookies, or the cookie providers listed may provide an opt-out tool. Also, the following websites provide useful information about cookies, and may permit you to control the use of cookies by certain third parties: http://www.networkadvertising.org and https://www.aboutads.info.

Like most websites, we use Google Analytics to collect and process certain website usage data. To learn more about Google Analytics and how to opt out of personalized ads from Google, see https://tools.google.com/dlpage/gaoptout.

Please remember that if you do choose to disable cookies, you may find that certain sections of our Site do not work properly.

Our Site does not respond to browser do-not-track signals.

2. How We Use Your Information

We use the information we collect from you for the following purposes, to:

Provide our Site and services to you;
Respond to your requests for updates, comments, and questions;
Contact you for the purpose of raising funds for ALS United of Georgia;
Process your donation transaction;
Monitor the performance of our Site including metrics such as total number of visitors, traffic, and demographic patterns;
Interact with you, including to notify you with updates regarding our programs and to inform you about important changes to this Policy;
Tailor the content we display to you in our Site and communications, including advertising;
Manage, operate, and improve the Site, including our understanding of our Site users and the effectiveness of our marketing, and diagnose or fix technology problems;
Conduct audits, data analysis, recordkeeping, developing new programs, enhancing, improving or modifying our programs, identifying usage trends and determining the effectiveness of fundraising campaigns and program activities, and updating and expanding our organizational activities; and
Comply with legal requirements and industry standards, detect, investigate, and prevent activities that may violate our policies or be fraudulent or illegal, and protect the rights of ALS United of Georgia, you, or others.

We may use and share information in an aggregated or de-identified manner at our discretion, including for research, analysis, modeling, marketing, and improvement of our Site.

3. How We Share Your Information

Vendors, and Service Providers. We may share information with service providers, volunteers, program partners, and other third parties that assist ALS United of Georgia in furtherance of its mission and that we believe need the information to perform a research, organizational, or other professional function for us such as website operation, maintenance and hosting of our Site, processing your donation, business partners, accounting, auditing, and tax services, other professional services, and others with your consent.
Social Media. If you engage with ALS United of Georgia on a public, social media platform, you may be sharing your personal information with your friends associated with your social media account, to other website users, and to your social media account provider, in connection with your social sharing activity. Please note that any information you post within these public forums or social media pages may become public and may be read, collected, and used by anyone.
Merger, sale, or other asset transfers. We reserve the right to transfer to another entity or its affiliates or service providers some or all information about you in connection with, or during negotiations of, any merger, acquisition, sale of assets, joint venture, change in ownership control, assignment, transfer, financing transaction or other disposition of all or any portion of our organization (including in connection with any bankruptcy or similar proceedings). We cannot promise that an acquiring party or the merged entity will have the same privacy practices or treat your information the same as described in this Policy.
Legal. We share information where necessary to comply with applicable law, to respond to requests from law enforcement agencies or other government authorities or third parties, as permitted by law and without your consent when it is necessary to protect our donors, employees, or property; to enforce our Terms of Use; in emergency situations; or to enforce our rights under our policies.
Your Consent. In addition to the other disclosures described in this section, we may also disclose your information as you expressly authorize us to do so.

4. How We Protect and Store Your Information

ALS United of Georgia takes precautions to protect your information. When you submit sensitive information via the website, your information is protected both online and offline. Wherever we collect sensitive information (e.g. credit card information), that information is encrypted and transmitted to us in a secure way. You can verify this by looking for a lock icon in the address bar and looking for "https" at the beginning of the address of the webpage.

While we use encryption to protect sensitive information transmitted online, we also protect your information offline. Only employees who need the information to perform a specific job (for example, billing or customer service) are granted access to personally identifiable information. The computers and servers in which we store personally identifiable information are kept in a secure environment. This is all done to prevent any loss, misuse, unauthorized access, disclosure or modification of the user's personal information under our control.

The Company also uses Secure Socket Layer (SSL) for authentication and private communications to build users' trust and confidence in the internet and website use by providing simple and secure access and communication of credit card and personal information.

5. Our Retention of Your Information

The data we collect from you will be stored for no longer than necessary. The length of time we retain said information will be determined based upon the following criteria: the length of time your personal information remains relevant; the length of time it is reasonable to keep records to demonstrate that we have fulfilled our duties and obligations; any limitation periods within which claims might be made; any retention periods prescribed by law or recommended by regulators, professional bodies or associations; the type of contract we have with you, the existence of your consent, and our legitimate interest in keeping such information as stated in this Policy.

6. Opt-Out Choices

All users and visitors to our website have the option to discontinue receiving communications from us by way of email or newsletters. To discontinue or unsubscribe from our website please send an email that you wish to unsubscribe to privacy@alsgeorgia.org.

SMS Disclosure and Opt-Out Choices: By providing your phone number, you are opting-in to receive text messages from ALS United of Georgia. You can easily opt-out at any time by replying STOP, and if you need assistance, reply HELP. The frequency of messages will be based on your level of involvement throughout the year and will not be overly frequent. Standard message and data rates may apply.

7. Deletion Requests

All users and visitors to our website have the option to request deletion of personal information we collect from you. To request deletion of your personal information, please send an email notifying us that you wish to have your personal information deleted to privacy@alsgeorgia.org.

Please note that we may not always be able to comply with your request for deletion for specific legal reasons. We will notify you if we are unable to comply with your request to delete data within a reasonable time frame once we receive your submission.

8. No Use by Children

ALS United of Georgia's website is not directed to, and does not knowingly collect personal identifiable information from, children under the age of thirteen (13). If it is determined that such information has been inadvertently collected on anyone under the age of thirteen (13), or equivalent minimum age depending on jurisdiction, we shall immediately take the necessary steps to ensure that such information is deleted from our system's database, or in the alternative, that verifiable parental consent is obtained for the use and storage of such information. If a child has provided us with personal information, a parent or guardian of that child may contact us a privacy@alsgeorgia.org to have the information deleted from our records.

9. Links to Unaffiliated Third-Party Websites

Our website does contain links to affiliate and other websites. ALS United of Georgia does not claim nor accept responsibility for any privacy policies, practices and/or procedures of other websites. Therefore, we encourage all users and visitors to be aware when they leave our website and to read the privacy statements of every website that collects personally identifiable information. This Policy applies only and solely to the information collected by our website.

10. How to Contact Us

If you have questions about this Policy, or if you would like to make a suggestion about our privacy practices, you may contact us at the following:

Email: privacy@alsgeorgia.org

Phone: 404.636.9909
Mailing Address:
ALS United of Georgia
227 Sandy Springs Pl NE Suite D, Box #304,
Sandy Springs, GA 30328

11. Privacy Rights

Certain jurisdictions have specific legal requirements and grant privacy rights with respect to personal information, and we will comply with restrictions and any requests you submit as required by applicable law. If you are seeking to exercise your rights under a law of a specific jurisdiction, please contact us using the “How to Contact Us” section above.

12. International Data Transfers

Please be aware that we are headquartered in the United States. The Site is governed by United States law. If you are using any of our services from outside of the United States, your information may be transferred to, stored, and processed in the United States where our servers may be located. The United States might not offer the same level of privacy protection as the country where you reside or are a citizen.

Your personal information will only be transferred to the United States or other jurisdiction outside the EEA, EU, or UK if there is a safeguard in place to ensure an appropriate level of data protection for your personal information.

13. Jurisdiction Specific Notices

European and UK Residents

Our Legal Basis for Collecting Personal Information

Whenever we collect personal information from you or otherwise process personal information about you, we do so on the following legal bases:

Your consent to such collection and use (for example, in some jurisdictions, we may need your consent in order to process your personal financial information when you donate to our organization).
Out of necessity for the performance of an agreement between us and you, such as your agreement to use our services or your request for services.
Our legitimate interest, including but not limited to the following circumstances where collecting or using personal information is necessary for:
1. General business operation and diligence (for example, to develop and maintain relationships with vendors, partners, and other organizations and dealing with individuals who work for them).

Provided that, in each circumstance, we will weigh the necessity of our processing for the purpose against your privacy and confidentiality interests, including taking into account your reasonable expectations, the impact of processing, and any safeguards which are or could be put in place. In all circumstances, we will limit such processing for our legitimate business interest to what is necessary for its purpose.

Rights of European, Swiss, and UK Residents

Europeans and those persons who reside in the EEA, Switzerland, and the UK have rights under European, Swiss, and UK data protection laws. These rights are summarized below. These rights are not applicable in all circumstances and exemptions may apply.

These rights include the following:

Access – You are entitled to ask us if we are processing your information and, if we are, you can request access to your personal information (commonly known as a data subject access request). This enables you to receive a copy of the personal information we hold about you and to check we are lawfully processing it.
Correction – You are entitled to request that any incomplete or inaccurate personal information we hold about you is corrected, though we may need to verify the accuracy of the new data you provide to us.
Erasure – You are entitled to ask us to delete or remove personal information in certain circumstances. This enables you to ask us to delete or remove personal information where there is no good reason for us continuing to process it. You also have the right to ask us to delete or remove your personal information where you have successfully exercised your right to object to processing (see below), where we may have processed your information unlawfully or where we are required to erase your personal information to comply with local law. There are also certain exceptions where we may refuse a request for erasure, for example, where the personal information is required for compliance with law or in connection with legal claims.
Restriction – You are entitled to ask us to suspend the processing of certain of your personal information in one of the following scenarios:
- If you want us to establish the data’s accuracy;
- Where our use of the data is unlawful but you do not want us to erase it;
- Where you need us to hold the data even if we no longer require it as you need it to establish, exercise or defend legal claims; or
- You have objected to our use of your data but we need to verify whether we have overriding legitimate grounds to use it.
Transfer – You may request the transfer of certain of your personal information to another party in some circumstances. To help with that you have a right to ask that we provide your information in a structured, commonly used, machine-readable format. Note that this right only applies to automated information which you initially provided consent for us to use or where we used the information to perform a contract with you. We do not use personal information to make automated decisions about you in any situations where you may have a legal right to opt out.
Object to Processing – Where we are processing your personal information based on a legitimate interest (or those of a third party) as the legal basis for that particular use of your personal information, you may object to processing on this ground. However, we may be entitled to continue processing your information in certain circumstances. Where your personal information is processed in order to send you direct marketing, you are entitled to object to this at any time. In some cases, we may demonstrate that we have compelling legitimate grounds to process your information which override your right to object.
Withdraw Consent – Where you have provided your consent to the collection and processing of your personal information for a specific purpose, you have the right to withdraw your consent for that specific processing at any time.
Right to lodge a complaint with a data protection supervisory authority at any time – You may also have the right to make a GDPR complaint to the relevant Supervisory Authority. A list of Supervisory Authorities is available here: http://ec.europa.eu/justice/data-protection/bodies/authorities/index_en.htm. If you are based in the UK, you can make a complaint at any time to the Information Commissioner’s Office (ICO), the UK regulator for data protection issues (ico.org.uk).

Exercising Your Rights as a European, Swiss or UK Resident.

To exercise your rights described above, please submit a verifiable request to us by sending us an e-mail at privacy@alsgeorgia.org.

We cannot respond to your request or provide you with personal information if we cannot verify your identity or authority to make the request and confirm the personal information relates to you. Making a verifiable request does not require you to create an account with us. We will only use personal information provided in a verifiable request to verify the requestor’s identity or authority to make the request.

We try respond to legitimate requests within one month (or within three months of its receipt at the latest, if we require more time and such extension is permitted by applicable laws). Occasionally it could take us longer than a month if your request is particularly complex or you have made a number of requests. In this case, we will notify you and keep you updated.

We may require more time in particular where we have received a large number of requests or complex requests. In such cases, we will inform you of the reason and extension period in writing.

We will deliver our written response electronically (unless you request otherwise). Your rights will be exercisable subject to limitations as provided for by European data protection laws. The response we provide will also explain the reasons we cannot comply with a request, if applicable.

We do not charge a fee to process or respond to your verifiable request unless it is excessive, repetitive, or manifestly unfounded. If we determine that the request warrants a fee, we will tell you why we made that decision and provide you with a reasonable cost estimate before completing your request.

14. Updates to this Privacy Policy

Our Policy may change from time to time. We will post any privacy policy changes on this page and, if the changes are material, we may provide a more prominent notice (including, email notification of privacy notice changes) for a reasonable period of time. Nevertheless, you should review this Policy from time to time to be sure you are aware of the most recent version.