Resources for ALS Caregivers

Caring for someone living with ALS is hard. ALS United of Georgia tries to make it a little bit easier. We care for and about you.

Those who love and care for people living with ALS know how overwhelming it can be. As the patient experiences the loss of mobility associated with the disease, so too do the people caring for him. As the illness progresses, the amount of help needed increases. Caregivers are on call every minute of the day, regardless of their other responsibilities. Often, they are so focused on the patient’s needs that they forget to take care of themselves. Most of them keep quiet about the effects of ALS on their own lives because it’s hard to complain when someone you love is suffering.

ALS United of Georgia staff and volunteers understand that ALS affects an entire family and not just the person with the diagnosis, which is why we offer programs to designed for caregivers including support groups and respite care.

53 Million

people in the U.S. provide care to a chronically ill, disabled, or aging family member or friend.

24 Hours

is the average per week caregivers spent providing care for their loved one.


of caregivers in the U.S. are female, and the average age is 49.

Caregivers Support Group

ALS United of Georgia hosts a quarterly Caregiver Support Group where caregivers share their experiences and get support and understanding from those who know how difficult it can be to care for someone living with ALS. 

Upcoming Meetings:

  • Saturday, March 2nd
  • Saturday, June 1st
  • Saturday, September 7th
  • Saturday, November 2nd 

RSVP Required. For more information, contact our Care Services team at or 404.636.9909

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Respite Care

The Sally Panfel In-Home Care and Respite Program provides up to 18 hours of in-home care a week to Georgians living with ALS while their families secure permanent support with day-to-day care. 

Eligibility is determined through information provided via The Sally Panfel Application, a Need's Assessment and a Program Survey.

For additional information please contact the Care Services Team: or 404.636.9909.